I don’t mean for this blog to be super Crohn’s focused, but at the moment my main obsession is the journey towards feeling healthy regularly. I met with my doctor earlier this week and we talked about my colonoscopy results. My small intestine is quite inflamed: narrowed, red, raw, and has lots of ulcers in it. There was also some mild inflammation (just looking a bit red) in a few spots in my colon. We discussed medication options and decided that we’d go with one of the more promising therapies in the literature: combination Remicade (a TNF-alpha inhibitor) and Imuran (an immunomodulator) therapy. This combination of drugs seems to be the most effective treatment we currently have for putting Crohns-y people into remission and keeping them there. Some of the potential side effects are a bit worrisome, but the major ones are rare, and I think it’s worth the risk. I want to get my digestive system as close to normal as I can (I want to eat seitan and gluten-containing baked goods again!), and I want to feel normal (or close to it) often enough so that I can take it for granted again =)
So, I just started taking Imuran this week. So far I haven’t experienced any side effects. I’ll be getting lots of blood tests over the next month to make sure that I don’t end up with bone marrow suppression or other weird things happening with my immune cells. If all goes according to plan, I’ll probably start getting Remicade infusions next month.